Yesterday, Today and Tomorrow
John Mark is 3 months old now. We finally feel like our heads have stopped spinning after receiving the news 7 months ago that John Mark would be born with hydrocephalus and holoprosencephaly. I can clearly remember being devastated at the thought of not ever bringing my precious boy home. I can clearly remember the long torturous days as we waited to see what the next sonogram or fetal MRI would show. I can clearly remember trying to prepare for the worse. But that was not our story.
Isaiah 43:2
With every crushing blow came God's hand of mercy and grace. With every crushing blow more and more people began praying for our son. Through out the remainder of the pregnancy we witnessed the hand of God like we've never seen before. The amniocentesis came back completely normal after fearing the worse because of the history of neural tube defects in Josh's family. The dreaded holoprosencephaly (when the brain doesn't properly divide) was discarded after a fetal MRI detected the dividing line. Most importantly the swelling stabilized after witnessing sonogram after sonogram that showed increased swelling. We have the images to prove it! I went on to have a very normal delivery and John Mark left the hospital 3 days after birth without a single stitch on his head.
The most bizarre part of all this is that John Mark still has swelling in his brain, but no need for surgery. He has been diagnosed with vetriculomegaly which is enlargement of the brain ventricles and can be the precursor to hydrocephalus. John Mark continues to make his doctors scratch their heads. If it weren't for what the images reveal John Mark would be a 100% healthy child.
We continue to monitor his ventriculomegaly which at times seems torturous because we have to succumb him to procedures that seem so unnecessary because of how great he is doing. Even though we are still in the process of waiting to see if he will have surgery I could not be grateful enough for the way our son's story has been written. My heart could never be grateful enough for my sweet, chunky boy who loves to smile. John Mark's weight is twice more than ideal, at 3 months wears 6-9 months clothing and has only fought one cold. His life is a miracle and the journey we have been on is a testimony of God's healing power and answered prayer. The day we left the hospital a man we didn't know asked Josh if our son was okay. Josh asked how he new of our son. The man said he was in the waiting room of the doctor's office with his wife when we walked out heart broken after hearing the news about John Mark. He said he remembered our tears and anguished faces. Josh was able to share with the man what God had done since then.
I've said it before and I say it again...God is good yesterday, today and tomorrow! We still don't have answers but one thing we do have is the Lord and that is more than enough.
Isaiah 43:2
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With every crushing blow came God's hand of mercy and grace. With every crushing blow more and more people began praying for our son. Through out the remainder of the pregnancy we witnessed the hand of God like we've never seen before. The amniocentesis came back completely normal after fearing the worse because of the history of neural tube defects in Josh's family. The dreaded holoprosencephaly (when the brain doesn't properly divide) was discarded after a fetal MRI detected the dividing line. Most importantly the swelling stabilized after witnessing sonogram after sonogram that showed increased swelling. We have the images to prove it! I went on to have a very normal delivery and John Mark left the hospital 3 days after birth without a single stitch on his head.
The most bizarre part of all this is that John Mark still has swelling in his brain, but no need for surgery. He has been diagnosed with vetriculomegaly which is enlargement of the brain ventricles and can be the precursor to hydrocephalus. John Mark continues to make his doctors scratch their heads. If it weren't for what the images reveal John Mark would be a 100% healthy child.
We continue to monitor his ventriculomegaly which at times seems torturous because we have to succumb him to procedures that seem so unnecessary because of how great he is doing. Even though we are still in the process of waiting to see if he will have surgery I could not be grateful enough for the way our son's story has been written. My heart could never be grateful enough for my sweet, chunky boy who loves to smile. John Mark's weight is twice more than ideal, at 3 months wears 6-9 months clothing and has only fought one cold. His life is a miracle and the journey we have been on is a testimony of God's healing power and answered prayer. The day we left the hospital a man we didn't know asked Josh if our son was okay. Josh asked how he new of our son. The man said he was in the waiting room of the doctor's office with his wife when we walked out heart broken after hearing the news about John Mark. He said he remembered our tears and anguished faces. Josh was able to share with the man what God had done since then.I've said it before and I say it again...God is good yesterday, today and tomorrow! We still don't have answers but one thing we do have is the Lord and that is more than enough.
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